Recently played a few games on Caldera (warzone) and then...
Lots of luck in this one, but satisfying
8 years ago I trusted and believed that the medical system would correct issues with pain care and they were. Random pill counts, drug screens so through they can probably tell you what I ate last week, they better at close to $700 a month. Pain contracts, psych evaluations, routine nerve studies, MRIs, and monthly visits with questionnaires checking to ensure we were safely storing medications, monitoring our mental health and risk for abuse. Various other safeguards in place for my well being. I have always been compliant. I have been patient and understanding as my specialist sat with me in his office and explained the pressure and "rules" placed on him to begin to cut medication completely and taper the others. Now, I sit terrified, I was informed as of December 31st my Drs practice is retiring. I 100% understand and don't blame them. They have fought in the trenches to protect their patients to the point they have lost money and I know the stress has caused their health to decline. It doesn't make my reality any less terrifying. See, I began pushing the boundaries and reducing medications long before I was asked. I have faked the smiles and walked the best I could with my head held high. Then I get home and spend 3 days recovering from the visit. I am silently suffering from such intense pain that some days it becomes too much and I cry out or wince in pain. I spend my days trying every compression brace, pain cream, and device available to provide relief. Something has also happened along the way. I became a GiGi. 1 by 1 my precious Angel's have come into this world and I live with such heartbreak and pain because I am not there for them, I cant take them to the zoo, the park, or even have them spend the night with me. I am not the only person suffering in my pain. My husband, my family, my friends, they have all lost the person I used to be. Many days now I spend propped up, trapped in a body that continually betrays me. It doesnt matter to the DEA, CDC or any lawmaking body that for over 10 years before they decided to violate my life and think they know better than ALL of my Drs, I was active again, I went on high school trips with my kids, slept on buses, ran up and down stadiums, and had a wonderful part time job that I loved. So now as I sit here looking towards 2020 and beyond, I am sad and in fear. What else are they going to do to take my life away... check your statistics. Not only has this war on all opioids not helped any of the true addicts but now people who once lived somewhat happy and productive lives are under so much pressure and pain from not being treated or being undertreated, they are taking their own lives... So you tell me, what do I have to look forward to. Right now I am afraid, not much. I see needing a cane, building a wheelchair ramp, making our home handicap accessible just so I can manage daily needs. All because some government agencies decided to play Doctor.
The fight continues and people are speaking out more and more. This is the 1st time I have shared from Shasta's Twitter but she does a lot of research and sharesbher findings and posts opinions often. Hopefully somedaye soon we can STOP THE STIGMA
This is the letter I wrote to the Opioid Steering Committee December 27, 2017
((((Please note I used part of a form letter and changed/added parts for my story.... There are TOO MANY of US BEING discriminated against. We should be covered under the ADA but it seems it does not matter. It is honestly out right discrimination. We all need to find our inner Rosa Parks and take back OUR SEAT!))))
To the FDA Opioid Policy Steering Committee
I am writing to add my comments to those of many other people in agony, concerning the mission of the FDA Opioid Policy Steering Committee. Because I have difficulty organizing my ideas, I have borrowed part of this from a letter published in social media. However everything written below is true to the best of my knowledge.
I have been a chronic pain patient for many years, as I was hit by a drunk driver in 1999, along with a spinal birth defect, resulting in 8 back and neck surgeries to date. I will require more as I age because my surgeries are just for stabilization and to prevent paralysis. I also have recurring lyme, lupus, RSD, as well as rheumatoid arthritis. I cannot take morphine, as it causes a drastic drop in blood pressure that nearly killed me on 3 occasions, until the anesthesia group determined the cause.
My doctors have tried me on many therapies. The only ones that have worked have included prescription opioid medications. I did not seek out these medications. I take only as much as needed to partially control my pain, and only under my doctor’s direction. I refused ALL narcotics until uncontrolled pain caused a TIA and I was sent to a pain management specialist who assured me he would follow my care and use closely and I would not become an addict. Now I sit in fear that once the regulations continue to pressure all Drs and pharmacies to the point no one will have access to these medications. Before you tell me that won't happen, I might mention that I no longer can get my medications through my local pharmacies, they are all too scared to take on any pain patients, I have to spend 100's of extra dollars on top of the cost of my medications to send to my husbands work approved mail order pharmacy and wait/pray my medications don't get lost or that they are delivered on time. Yes, I was forced to go through a week long withdrawal when my 30 day prescription that I stretched 40 days could not be filled ANYWHERE.
Because of the prevailing hostile regulatory environment, my doctor no longer feels safe in prescribing opioids to anyone, including me. He fears being maliciously persecuted by the DEA or State authorities and losing his license, thus his livelihood.
I have personally been harmed by denial of appropriate and effective opioid medications. I have never failed a urine test. I am not a “drug seeker”. I do not “want” to take opioids, even though nothing else works for me. I am a person in pain whose quality of life is being destroyed by government policy.
I have been told that because of these regulations, my specialists may have no choice but to stop prescribing opioid medications. From experience, I know that further lowering my dose level, or worse, will destroy my life and disable me from the few activities I am now able to do. I will once again become bed-ridden, rely on the use of a motorized wheelchair, cane, walker, and other aides just to perform daily activities.
The most important factor that is driving me further into disability is the 2016, 2017, and now coming 2018 CDC opioid prescription standards. Though written as voluntary and directed to general practitioners, Congress made them mandatory in December 2015 – three full months before publication. They are now widely regarded as mandatory standards by legislatures in several States.
There is widespread consensus among doctors that the CDC standards are fatally flawed: unfairly and unscientifically biased against opioid therapy, unsupported by medical evidence, inaccurate and grossly incomplete. Failure to acknowledge natural differences in opioid metabolism between individuals makes the standards actively dangerous to patient health and function. These standards must be immediately withdrawn for a major rewrite to correct their many errors. Patients or their advocates should be voting members among the writers group.
There is no one-size-fits-all pain patient, and there can be no one-size-fits-all opioid treatment standard for either dose or duration versus diagnosis. Imposing arbitrary limits on the number of pills prescribed, or allowing pharmacists to audit prescriptions will only drive more doctors out of practice and more patients into agony. It is time to remove government from doctor-patient relationships. You don’t know what you’re doing and people like me are suffering from your incompetence.
Most ironically of all, the well-intended actions of government in restricting opioid prescriptions are having exactly the opposite effects. Deaths from street heroin and fentanyl have skyrocketed even as the number of prescriptions has fallen in the past five years. Arguably, prescriptions made by doctors to real pain patients are not now and have never been a major factor in the death toll. Public policy on addiction must be redirected toward prevention in kids and harm reduction in adults. Restriction of pain relief contributes nothing to either goal.
Recently played a few games on Caldera (warzone) and then... Lots of luck in this one, but satisfying